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Will's Story


Raising Awareness

Team Sanfilippo

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The ultimate goal of this foundation is to find a cure for Sanfilippo syndrome. It is our desire to advance research, education and improve the quality of life for the children affected by this disease. We hope to raise awareness and find a treatment for this devastating disorder.

This foundation has been formed to receive and distribute funds for scientific, educational and charitable purposes within the meaning of 501(c)(3) of the Internal Revenue Code.

Because the Internet is now a dominant resource for many people seeking information, our hope, through this website, is to educate the public with one goal in mind... Find a cure!

With your support, The Will Luthcke Foundation, will enhance the lives of thousands of children around the world. 

Help us find a cure for Sanfilippo Syndrome.